UChicago Medicine Comer Children's

Sturge Weber Syndrome

What is Sturge Weber Syndrome? 

Sturge Weber syndrome is a rare condition that involves a capillary malformation (port wine stain) and abnormalities of the brain and/or eye (glaucoma, a condition associated with damage to the optic nerve).

Individuals with Sturge Weber syndrome often have a large capillary malformation on the forehead or upper eyelid. Children with facial port wine stains should be assessed by a physician who specializes in diagnosing and treating vascular anomalies.

Diagnosis & Treatment

The diagnosis and treatment of Sturge Weber syndrome often requires several types of pediatric experts. The vascular anomalies team at Comer Children's evaluates, treats and monitors the vascular malformations associated with the syndrome and works closely with other specialists involved in the patient's care.

Laser treatment often is used for vascular malformations related to Sturge Weber syndrome. A pulsed-dye laser, which uses a light beam to gradually destroy the dilated blood vessels, has been shown to lighten port wine stains.

Why Choose Us?

The vascular anomalies program at Comer Children's offers an integrated and comprehensive approach to the diagnosis, care and management of vascular malformations. Our multidisciplinary team of pediatric experts works together to educate families and to evaluate and treat children with all types of these vascular lesions.

Resources & Support for Patients with Vascular Anomalies

Patient Resources at Comer Children’s

Kids want to feel like kids, even when they're sick. Our Child Life therapists use play, art and other approaches to take some of the scare away from the hospital experience and to help kids feel as normal as possible, in spite of their disease. Located near Comer Children's, the Ronald McDonald House provides a home away from home for families while their child is hospitalized.

Patient Resources & Support Groups

These organizations and support groups may be helpful to families and patients by providing support, education and treatment information on vascular anomalies.