Identification of the genes for neurofibromatosis (NF)--NF-1 or NF-2--offers tremendous hope for the future. For instance, identification of the NF-1 gene has helped us understand how tumors in NF-1 form. As we understand more about the gene, we hope to be able to predict and control the problems caused by the abnormal gene.
While there is no cure for NF at the present time, there are many things that you can do that will make a significant difference in your life or the lives of you children.
Remember, if your child has NF, you are your child’s protector. If you, yourself, are affected, you must be your own advocate as well. This means that you must be sure that you talk to your doctor about any new problems or concerns.
There are also many people besides your doctor that you can rely on for help with NF. They include members of your local NF support group, genetic counselors, teachers, and psychologists.