This information is for families who have recently been told that one member may have neurofibromatosis (NF). When you were first told about NF, you may only have heard the word neurofibromatosis and nothing else. As some of the initial shock wears off, you will want to know more about this disorder or group of disorders, because NF really is more than a single disorder. This information will explain what NF is, what causes NF, what your family will need to do about it, and who can help you.
The University of Chicago Hospital Ambulatory Program for Neurofibromatosis is the largest NF program in the country and is a comprehensive clinic for children and adults.