Celiac Disease Center
The prevalence of celiac disease in the United States has been estimated to be as high as one in 133 individuals. At the same time, only one in 4,700 individuals have been diagnosed with celiac disease. The average delay in diagnosis for a person with symptoms is 11 years. On average, a child will visit eight pediatricians before being diagnosed with celiac disease.
Undiagnosed celiac patients are at greater risk of osteoporosis, anemia, infertility, type 1 diabetes and other serious illnesses, in addition to suffering ongoing health problems that can compromise quality of life.
Once diagnosed, people with celiac disease often receive no instruction on the only medical intervention to treat their condition: the gluten-free diet. As a result, the newly diagnosed celiac struggles to learn the diet on his/her own, often consuming gluten by mistake and delaying their recovery.
At the University of Chicago Celiac Disease Center, our mission is to raise diagnosis rates for celiac disease and meet the critical needs of people with the condition, through education, research, and advocacy.
Celiac Disease Information Line
Provides medical information to help people receive a timely celiac diagnosis, and counsel to physicians with questions about celiac disease testing.
Gluten-Free Care Package Program
Basket of food and resource materials helps to instruct dietitians and newly diagnosed patients on the gluten-free diet.
Annual Celiac Blood Screening
Free research blood screening each fall draws participants throughout the Midwest, and helps families overcome problems with insurance.
Patient and Professional Education
A team of speakers works year-round to educate medical professionals, people with celiac disease, and the public about diagnosing and treating this condition.
We offer a two-day training course for physicians and nurse practitioners. The intensive course includes formal instruction as well as hands-on training.
Celiac Disease Research
We have one of two research teams in the world that is working to understand the nature of the immune system in the gut and the earliest response of the intestine to the presence of gluten. Research is currently under way in our dedicated celiac disease laboratory, under the direction of Dr. Bana Jabri, a world-renowned celiac researcher.